about us
Our Story
In 2017, my son, who was 11 years old at the time, was hospitalized for four months in a Denver hospital, as a result from having ARFID. At the time, he was suffering from severe malnutrition and refusing to eat. Through countless hours of therapy, meetings with dietitians, eating disorder specialists, psychiatrists, therapists and physicians both in and out of the hospital, my son slowly got back up on his feet again. Today, he is doing really well and I am so proud of his continuous hard work. While he still has challenges eating, he has the tools to help him stay physically healthy. Those tools include: techniques he learned during therapy, eating "safe foods", drinking the occasional supplement, and using a form of distraction found in laughter, sharing stories, and focusing on his service dog, to help him successfully get through a meal.
I think it’s important to note that recovery is an ongoing process. While meals definitely get a bit easier over time, our son continues to challenge himself everyday, as he moves forward with his life as an adolescent in middle school. Some challenges, for example, are to eat when he has no appetite, due to stress and anxiety. Another challenge might be to go with the family to a new restaurant, or perhaps it is eating with a new friend or a big group of people. He also challenges himself by trying new foods, so that he avoids "jagging" out of the foods he currently eats. Jagging is a term used in the ARFID world which refers to developing an intolerance for eating a food that you have eaten to much of and refuse to eat it any longer.
As for me, I’d like to think of myself as a “survivor” to a child who has been through recovery from ARFID. I call myself that because any parent who has watched their child grow critically ill from malnutrition, been hospitalized for any length of time, who supported their child through weight restoration, or who has been on the receiving end of the emotional strain that a child goes through in treatment, has probably felt like they have been through hell and back. I believe my son and I are both stronger because of the fight we endured together. I am not naive, however, about recovery and its permanence. I know I must remain hyper vigilant and always keep in my mind, the fragility of recovery, in order to help sustain it.
I think it’s important to note that recovery is an ongoing process. While meals definitely get a bit easier over time, our son continues to challenge himself everyday, as he moves forward with his life as an adolescent in middle school. Some challenges, for example, are to eat when he has no appetite, due to stress and anxiety. Another challenge might be to go with the family to a new restaurant, or perhaps it is eating with a new friend or a big group of people. He also challenges himself by trying new foods, so that he avoids "jagging" out of the foods he currently eats. Jagging is a term used in the ARFID world which refers to developing an intolerance for eating a food that you have eaten to much of and refuse to eat it any longer.
As for me, I’d like to think of myself as a “survivor” to a child who has been through recovery from ARFID. I call myself that because any parent who has watched their child grow critically ill from malnutrition, been hospitalized for any length of time, who supported their child through weight restoration, or who has been on the receiving end of the emotional strain that a child goes through in treatment, has probably felt like they have been through hell and back. I believe my son and I are both stronger because of the fight we endured together. I am not naive, however, about recovery and its permanence. I know I must remain hyper vigilant and always keep in my mind, the fragility of recovery, in order to help sustain it.