ASK ARFID
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Welcome to our website, “AskArfid.” If you have come to this site, you probably have a child or loved one dealing from ARFID, or maybe you are personally dealing with it yourself. Regardless of your situation, our hope is that this website helps you in some way as you travel along this arduous journey.  As a parent to a child, who was hospitalized for several months with ARFID, I wanted to make myself accessible to other parents, children, and adults dealing with ARFID. 


Something particularly special about this site is that in addition to myself, my 13 year-old son, who has been in recovery for 2 years now, will also be fielding questions. With this approach, we hope that kids can feel comfortable reaching out to him, as a peer, who has already been through treatment and recovery. Additionally, parents can reach out to my son with questions. Sometimes when one looks at the disorder through the eyes of another child, who has already gone through treatment and recovery, those parents can provide better support for their own child.


Additionally, we will intermittently update this site in the resource section with news articles, meditations, books, and other valuable resources that we find on ARFID. We will post blogs on relative topics that are currently being highlighted in the media, research findings, and or articles pertaining to ARFID. This is where you will also find the answers to your questions.


I want to point out that I am not a doctor nor a therapist. All answers provided by both my son and I are based on our individual experiences with ARFID. They are our honest opinions/thoughts on what life was like before, during, and/or after treatment. If there is ever any concerns about the safety of yourself or your child, please seek immediate medical attention. This site is meant to be used as a resource and not as a substitute for professional treatment. Please also note that what worked for us may or may not work for you. Every ARFID case is unique, depending on what other challenges may be co-morbid with ARFID. 


6Lastly, recovery means different things to different people. For me, I would say my son is recovered when he is thriving, going out occasionally to restaurants, completing his lunch every day at school, and is happy. That said, my son’s definition of his recovery might be very different from mine and that is okay.

 
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WHY did we create this website?

When my son was hospitalized, I felt so helpless and hopeless. I was yearning for a source, a parent who was at one point in similar shoes as I was in, that could tell me that they too had a child with ARFID and that recovery is indeed possible. All I needed to know was that one “real” child had made it through this terrible battle and are now thriving. 

Similarly and unbeknownst to me at the time, my son had asked the hospital if he could please talk to a former patient who is now in recovery for ARFID, so that he too could know that recovery is really possible. 

Sadly, neither one of us got our wish and so we continued to walk blindly through this uphill battle. Consequently, my son and I have made it our personal goal to help others through this process, if we can. We want both ARFID kids and their parents to feel like they have someone that they could ask questions to in an effort to help you find you a tiny bit of solace/peace.
More at our Blog

In the news

The Rise Of ARFID/ The Truth About The Eating Disorder That Made A Teenager                       Go Blind? (The Guardian ) 

How To Spot Eating Disorders In Children Under 12​ (NBC News)

She Was 11 With An Eating Disorder. It Took Her Mom To Figure It Out (Washington Post)

Picky Eating (NYTimes)

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  • About ARFID
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